there we go!
[Image of meme. Top text: ”Friend abruptly says, ‘Try not to think about polar bears’ ” Bottom Text: ”Don’t hear them because you were daydreaming”]
This happened to me once and my friend found it hilarious that I had successfully avoided thinking about polar bears after being told not to.
[Image of meme. Top text: ”Attempt to think about something other than special interest.” Bottom text: ”Fail miserably”]
Submission by anonymous
[Image of meme. Top text: ”Special interest is an extremely obscure band” Bottom text: ”People accuse you of making them up”]
Submission by seenthecolorsfade
[Image of meme. Top Text: ”Agree with NT person” Bottom Text: ”For some reason, they think you’re disagreeing and get mad”]
I was thinking about this today because in one of my classes, the professor mispronounced a word and a student corrected her by saying “It’s pronounced x, not y.” (I don’t remember what the word was.) Another girl, (I don’t know her very well, but I see her around a lot and I’m pretty sure she’s autistic because she seems to stim a lot, she doesn’t really make eye contact when I talk to her, and her voice has that quality that’s different from most NT people) agreed by saying “It’s not pronounced y.” I knew what she meant—she was agreeing with the first girl. But no one else seemed to understand that, and the first girl got pissed off at her and behaved as though she’d disagreed with her, even though she’d literally said the exact same thing. I felt bad for the other girl. She seemed pretty embarrassed and apologetic, even though it didn’t look to me like she’d said anything wrong. I guess I found this interesting because it happens to me so frequently, but I’ve never seen it happen to anyone else.
I don’t understand NT people sometimes.
Submission by seenthecolorsfade
[Image of meme. Top text: ” ‘This song is weird. I don’t like it.’ ” Bottom text: ”Favorite song within the week”]
(The image is an overturned tanker, a colossus in white, blue, and red on a blue, relatively calm sea. It is lying on its side. The puzzle piece logo and the words ‘Autism Speaks,’ in the characteristic font and shade of blue, have been Photoshoped onto the side. It is captioned ‘Your ship of fail Listeth, sire).
Please pass these things around when you see them. The Internet runs on rumors and self-fulfilling prophecies.
So apparently a shit-ton of Autism Speaks people are abandoning ship because of a recent thing, and a lot of them are “we thought we could steer in a better direction, but they weren’t interested.” And JER resigned. So…yeah Autism Speaks doesn’t even have a token anymore and they’re pissing even parents off and I’m honestly OK with that.
Working on a link roundup right now. Please be advised that trigger warnings apply to most of this content - tread with caution.
The “Call for Action” released by A$:
Autistic people and organizations responding:
An Unholy Alliance: Autism Speaks and the Judge Rotenberg Center - Autistic activist Autistic Hoya responds to finding that the infamously abusive and dangerous JRC is sponsoring an event at the summit.
John Elder Robison resigns.
Autism Speaks Kidnaps “Policy Summit” - Autistic activist Paula Durbin-Westby has tons of useful information for things you can do now to counter Autism Speaks’s harmful actions.
ASAN-AAC Statement on Autism Speaks’ DC “Policy Summit” - from the Autistic Self-Advocacy Network and the Association for Autistic Community, both Autistic-run groups, lays out those organizations’ stance toward the summit
AWN Squares Off with Autism Speaks over National Autism Plan - by Professor Ibby Grace of the Autism Women’s Network Board of Directors
No more - a letter to Suzanne Wright - a powerful piece from Diary of a Mom wherein Jess, a former supporter of Autism Speaks, renounces support - contains a potentially triggering account of Suzanne Wright’s conduct toward Jess’s autistic daughter, Brooke
A Mouse That Roars: Standing in Defiance of Autism Speaks - a stirring and informative call to action by Kerima writing at the autism wars
Dear Ms. Wright, Autism Speaks and any others out there who may read this… - a deeply upsetting account from Mama’s Turn Now of the effect of Autism Speaks’s rhetoric on her child, who read some of the call to action linked above
The Price We Pay for Autism Speaks - by Mom2Rebels at Raising Rebel Souls, discusses the impact of Autism Speaks on her life and relationship with her children’s neurology.
Why are so many people mad at Autism Speaks right now? - from OMum22 at Small but Kinda Mightycontains useful background as well as a summary of the current situation
Yes, good. Links.
Corrected the link for Paula C. Durbin Westby’s information. It should work, now.
Here’s a lot of important links. Significant trigger warnings for ableism apply to the first one and I’d like to note that that article is quoted in several of the following articles. The following articles do, however, provide appropriate warnings.
I’m not entirely clear about what exactly BPD is, but I think it would be entirely possible.
Hopefully, though, someone who’s more sure can confirm or deny that for me.
Autistic people are joining fellow people with disabilities and allies to protest Autism Speaks’ Policy Summit at George Washington University’s Trachtenberg Media and Public Affairs building at 21st and H Streets NW this Wednesday from 8:00am to 12:30pm.
We stand against Autism Speaks’ long history of dehumanizing rhetoric about autistic people, irresponsible financial practices, and unconscionable claim to represent autistic people without including any autistic people in their leadership. At this week’s Policy and Action Summit, Autism Speaks will once again be speaking about autistic people without autistic people. Autism Speaks is one of only a few major disability advocacy organizations that has not included a single individual with the disability it purports to serve on its board of directors.
Autism Speaks uses rhetoric of pity and fear about autistic people to raise millions of dollars that do not return to local communities and that fund research and policy agendas developed without any input from autistic people. It is long since time for the practice of speaking about people with disabilities without including us at the table to end. Autism Speaks does not represent autistic people, and we urge community members to stand against unscrupulous fundraising practices that remove money from our community and all other local communities where Autism Speaks holds Walk Now events. Only 4% of Autism Speaks’ budget goes towards the “Family Service” grants that are the organization’s means of funding services. While 44% of its budget goes toward research, only a small percentage of this research is aimed at improving quality of life for autistic people. Most of the research that Autism Speaks funds is instead devoted to causation and prevention.
We urge policymakers and community members interested in supporting autistic people and our families to support disability rights organizations led by disabled people and to reject Autism Speaks’ agenda of siphoning money away from local communities and into research that does not benefit autistic people. As autistic people, we deserve a national plan on autism developed with us included at the table at every step of the way. We deserve a national plan on autism that moves away from the language of pity, fear, and tragedy, and toward achieving equality, access, and inclusion in our communities.
I do this with a few songs specifically. I’m usually just trying to satisfy the part of me that just wants to hear the chorus or specific verse and after that, I just don’t feel like listening to the rest of the song.
It could easily be that you react differently to sensitivities. Also, not every person on the spectrum is necessarily going to be aversive to touch on a sensory level.
Not everybody is going to have the same autism traits and the ones that are stereotyped tend to be the ones with the most variation, so there could easily be a whole list of things on this blog that just don’t apply to someone.
Personally, I find the smell completely overstimulating. I wouldn’t know much more about it as I haven’t really had any experience beyond the smell it leaves behind.
Anyone have an answer?